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| Dr Monique Kilkenny |
Recent advances in digital infrastructure has allowed linkage of administrative and clinical datasets. Dr Monique Kilkenny recently led the linkage of the Australian Stroke Clinical Registry with hospital administrative datasets. Stroke is a leading cause of death and disability in Australia and with this linked dataset, researchers will be able to reliably investigate the characteristics of patients who are rehospitalised and if these hospitalisations are potentially preventable.
Speaking of her research, Dr Kilkenny said, "Linkage of registry and administrative datasets will facilitate the investigation of the entire journey of patients with stroke.
Analysis of enriched, linked data will allow contacts with the health system before and after stroke events to be explored.
Australian data on factors related to hospital readmission for patients with stroke or Transient ischaemic attack (TIA) are limited. Using these data, we will be able to identify determinants of hospital readmission for patients who have had stroke or TIA".
For the first time in Australia, stroke or transient ischaemic attack patient data from a national prospective clinical quality registry have been merged with hospital data from multiple states.
In the research process, data for 16,214 patients registered in the Australian Stroke Clinical Registry (AuSCR) during 2009–2013 were linked with one or more state datasets from Victoria, Western Australia, Queensland and New South Wales. Dr Kilkenny said, "Interrogating this dataset will provide essential evidence — including information about missed opportunities for preventing stroke and providing post-stroke support — that will improve the quality of clinical care and, ultimately, health outcomes for patients with stroke or transient ischaemic attack", and that this information will improve stroke care by guiding policy and practice.
"It will be of particular value in stroke care because patients interact with several health care facilities, sometimes in different states; it would not be feasible to collect these data directly from all patients", she said.
Dr Kilkenny's collaborators in this research include members of the AuSCR Steering Committee, staff from the George Institute for Global Health, and the Florey Institute of Neuroscience and Mental Health who manage the AuSCR, all hospitals contributing data to the AuSCR, data linkage teams in New South Wales, Queensland, Victoria and Western Australia, the Population Health Research Network, and the Centre for Data Linkage.
Dr Monique Kilkenny is the Head of the National Stroke Data Linkage Program and is a Senior Research Fellow/ NHMRC Research Fellow [PhD, MPH, Grad Dip Epidemiol/Biostat, B App Sci (MRA)] in the Stroke and Ageing Research Group, School of Clinical Sciences at Monash Health. Dr Kilkenny is a highly experienced epidemiologist who has worked in research for over 25 years at National and International level.
Speaking of her research, Dr Kilkenny said, "Linkage of registry and administrative datasets will facilitate the investigation of the entire journey of patients with stroke.
Analysis of enriched, linked data will allow contacts with the health system before and after stroke events to be explored.
Australian data on factors related to hospital readmission for patients with stroke or Transient ischaemic attack (TIA) are limited. Using these data, we will be able to identify determinants of hospital readmission for patients who have had stroke or TIA".
For the first time in Australia, stroke or transient ischaemic attack patient data from a national prospective clinical quality registry have been merged with hospital data from multiple states.
In the research process, data for 16,214 patients registered in the Australian Stroke Clinical Registry (AuSCR) during 2009–2013 were linked with one or more state datasets from Victoria, Western Australia, Queensland and New South Wales. Dr Kilkenny said, "Interrogating this dataset will provide essential evidence — including information about missed opportunities for preventing stroke and providing post-stroke support — that will improve the quality of clinical care and, ultimately, health outcomes for patients with stroke or transient ischaemic attack", and that this information will improve stroke care by guiding policy and practice.
"It will be of particular value in stroke care because patients interact with several health care facilities, sometimes in different states; it would not be feasible to collect these data directly from all patients", she said.
Dr Kilkenny's collaborators in this research include members of the AuSCR Steering Committee, staff from the George Institute for Global Health, and the Florey Institute of Neuroscience and Mental Health who manage the AuSCR, all hospitals contributing data to the AuSCR, data linkage teams in New South Wales, Queensland, Victoria and Western Australia, the Population Health Research Network, and the Centre for Data Linkage.
Dr Monique Kilkenny is the Head of the National Stroke Data Linkage Program and is a Senior Research Fellow/ NHMRC Research Fellow [PhD, MPH, Grad Dip Epidemiol/Biostat, B App Sci (MRA)] in the Stroke and Ageing Research Group, School of Clinical Sciences at Monash Health. Dr Kilkenny is a highly experienced epidemiologist who has worked in research for over 25 years at National and International level.
Reference
Monique F Kilkenny, Joosup Kim, Nadine E Andrew, Vijaya Sundararajan, Amanda G Thrift, Judith M Katzenellenbogen, Felicity Flack, Melina Gattellari, James H Boyd, Phil Anderson, Natasha Lannin, Mark Sipthorp, Ying Chen, Trisha Johnston, Craig S Anderson, Sandy Middleton, Geoffrey A Donnan and Dominique A Cadilhac. Maximising data value and avoiding data waste: a validation study in stroke research Med J Aust 2019; 210 (1): 27-31. || doi: 10.5694/mja2.12029 Published online: 14 January 2019
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