On May 4th & 5th we will be walking 100km from Point Nepean to Federation Square in an effort to raise much needed funds and awareness for Chloe Saxby and other children like her who suffer from Vanishing White Matter Disease.
We are looking for Walkers and Sponsors to join our journey!
Vanishing White Matter Disease (VWM) is an extremely rare, genetic, degenerative, terminal brain disease that affects mostly children. This disease is devastating, with most patients diagnosed between the ages of 2 and 6 years old. In a very short period of time, it causes the inability to walk, talk and eat as well as blindness, deafness, loss of motor skills, mental retardation, spasticity, seizures, and coma and is followed by death often before reaching teenage years. A small bump to
the head, a temperature, a cold or even a fright could end Chloe’s life. There are only 7 known cases in Australia and around 172 living worldwide. There is currently no treatment or cure available.
If you are interested, please send a message to our Facebook page 'Walk for Chloe Saxby',
or contact Emily on 0478089107
For more information, please
contact Zoe Davidson, Department of Nutrition and Dietetics (zoe.davidson@monash.edu) or visit the
sites below.
Facebook: https://www.facebook.com/walkforchloesaxby/?ref=bookmarks
MyCause: https://www.mycause.com.au/events/walkforchloesaxby
MyCause: https://www.mycause.com.au/events/walkforchloesaxby
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